I know I'm totally hogging your feed today, but it's been a while since I've done a Reggie update. As you can see, she has a bit of torticollis. We're working on it with the PT. I brought up seeing a chiropractor with the PT, and she said she didn't think it would help (and she is married to one 😂).Regina's feeding continues to be a challenge, but we are making tiny steps in the right direction. She still takes 100% of her feeds by NG. She is closing in on goal weight for open heart surgery (12 lbs, and she is 11 lbs 7 oz) and she is already at the goal age (3-6 months and she is 3 months). Her next cardiologist appointment is in a few weeks and hopefully we can get an OHS date. Please keep praying that she doesn't get sick (that would push back her OHS and land her in the hospital) and that she manages to gain enough weight for a more hopeful surgery. #reggiegram
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  • sylbassI know I'm totally hogging your feed today, but it's been a while since I've done a Reggie update. As you can see, she has a bit of torticollis. We're working on it with the PT. I brought up seeing a chiropractor with the PT, and she said she didn't think it would help (and she is married to one 😂).Regina's feeding continues to be a challenge, but we are making tiny steps in the right direction. She still takes 100% of her feeds by NG. She is closing in on goal weight for open heart surgery (12 lbs, and she is 11 lbs 7 oz) and she is already at the goal age (3-6 months and she is 3 months). Her next cardiologist appointment is in a few weeks and hopefully we can get an OHS date. Please keep praying that she doesn't get sick (that would push back her OHS and land her in the hospital) and that she manages to gain enough weight for a more hopeful surgery. #reggiegram

  • sylbass@olivia5914 what dedication! Yes, actually the cardiologist has been really impressed by her weight gain! I guess heart babies have a really hard time gaining weight usually
  • raesha9dem rolls ♥️🥖
  • olivia5914@sylbass no more than your own, my dear, no more than your own!
  • _jennifermosqueraOh, I just love her. And I don't even know y'all!! 😂💖😍
  • sylbass@_jennifermosquera we love you guys too! 😘😘😘
  • ghsvailLook @ that sprout of hair on top!! I just want to squeeze her!
  • sylbass@ghsvail her lucky tuft is my fave 😂
  • tamtarulaGod bless you Reggie & your family ❤❤
  • sarahvautierSweet baby Reggie you are adorable 😍 and we will keep 🙏
  • instabrunk@sarahvautier amen to that❤️🙏🏻❤️
  • ritaatopenwindowPraying for your precious baby girl.
  • tpjacobs🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻
  • candela_puriMuchísima suerte para la operación,que Dios la bendiga 😊😍😍😍😍😍
  • sylbass@candela_puri Muchísimas gracias. Estoy muy nerviosa.
  • louise.mccartanSending you a prayer from Ireland this Easter Sunday xx
  • veryhoska@sylbass what kind of surgery is she having ?
  • milagrosfranco02Dios la bendiga y su infinita Misericordia, la envuelva
  • sylbass@louise.mccartan thank you!
  • sylbass@veryhoska open heart surgery to repair her AVSD
  • sylbass@milagrosfranco02 Amen!
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