Part 2 of my #Nusinersen journey is now up on the blog! {link in bio}

Although the administration of the drug was successful, yesterday's procedure didn't quite go according to plan. But, through it all, I found strength in the words of encouragement and support you have sent my way over the last week or so, and for that I feel so incredibly fortunate to have you all in my life. Thank you for following me on this journey- I don't know that I could do it alone. ❤️
94 likes
  • alyssaksilvaPart 2 of my #Nusinersen journey is now up on the blog! {link in bio}

    Although the administration of the drug was successful, yesterday's procedure didn't quite go according to plan. But, through it all, I found strength in the words of encouragement and support you have sent my way over the last week or so, and for that I feel so incredibly fortunate to have you all in my life. Thank you for following me on this journey- I don't know that I could do it alone. ❤️

  • socallmemaddoxStrongest girl I know ❤️❤️❤️
  • blakeriley32Thinking of you...sending prayers, and what a beautiful picture this is!
  • meganmaria13Alyssa you are paving the path for all sma adults and kids everywhere! You are so inspiring to many! Thank you for sharing your journey with everyone! Stay strong girl ❤️
  • yokecoHello Alyssa. I'm from France, and following your story with so much hope. I have type 2. You are brave, you are wonderful. Thank you.
  • alyssaksilva@socallmemaddox ❤️❤️
  • alyssaksilva@blakeriley32 thank you 😊
  • alyssaksilva@meganmaria13 that is so kind of you to say. 😌 Thanks, girl! ❤️
  • alyssaksilva@yokeco thank you so much. Best wishes- we're in this fight together!
  • boskokerryblueHappy New Year!!!
Log in to like or comment.