kadenscureA year ago, things started to change. I started to worry. I compared you to every other 6 month old I would see. I knew in my heart you were different. I couldn’t say it out loud yet, but something was wrong. I noticed how gentle you were. I questioned your doctor and told him you weren’t the same as other babies. I told him you were content just to stay in one place. He said you were just lazy. I told him you had stopped standing on me, he said you were working on other skills. I told him I was worried. He told me I was wrong. In the 6 months since we met you, we had so many bumps in the road from failure to thrive, transfer issues, tongue tie, food allergies, heat sensitivity, severe eczema and so on. Your Daddy often asked me if I thought you had a lot of little things wrong with you. I just kept telling him you were perfect. You are. We had never heard the letters, SMA. Sometimes I think those little bumps distracted us from learning more about you sooner. I’ll never forget the day that I knew you were different. You were on a playdate. I was of course comparing you to your little friend. I watched the power behind her legs kick your feet. Your little feet tapped her toes as your legs stayed still. I saw her stand as you struggled to sit. I saw her crawl as you happily observed. The sudden impact of realizing that you were not okay was the biggest force I had ever felt up until that point. I began researching tirelessly, trying to find the right combination of symptoms that described you. Since then, I have learned to draw on a much bigger force. A force that has both sustained my spirit and helped you thrive. A force that still tells me each morning that I am the luckiest mommy alive. That force is you, Kaden. Your love, your spirit. Your body may be weak but your spirit is stronger than any force in this universe. #curesma #tbt #KadensCure
- moriahjeanHow so many of us can relate to this story! It's hard when you know in your heart something is wrong you just don't know what it is. So frustrating. When we got the diagnosis my heart was broken, but that frustration of not understanding was gone. He's such a sweet boy with a wonderful momma!
- may_haus_of_artLindo lindo!!!!!!!
- kadenscure@moriahjean I know! The weeks leading up to his diagnosis were much harder for me than his actual diagnosis day.
- alex_and_ali_momIt's hard to watch my baby in a social setting with her peers. She likes to watch other kids and smiles at them. But she can't crawl like they can't nor sit or stand. Therefore she can't play with all the toys they can. For now she doesn't seem bothered by this, but I'm afraid one day she will. And she will ask me why she can't do the things others can. And I fear when she will go to school and if the others will accept her. For now she is still just a baby but I know she won't be a baby forever.
- monica.j.cVery deep!
- monica.j.cGod Bless You and your Family!
- musicmavenpublishingLove what you wrote -beautiful
- empoweredbirthprojectAll my love and prayers to you, beautiful strong mama, baby, family 🙏❤️
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